New to MS... but not really

http://www.cpnhelp.org/home

I’m in no way promoting this. I still don’t know how I feel about this being a cause, the right treatment course, etc. But I believe that unless we research as many different paths as possible, we’ll never find a cure. So, if anyone has personal experience with this, positive or negative, or have any  thoughts about this I’d love to hear from you.

Can’t tell if I’m having a heart attack or I pulled my pec muscle.

So we’re at my mom’s house while she recovers from knee surgery. Next week it’s supposed to be in the 60s and raining. This is the last snow for a while. So we made the most of it. We went sledding & had a great snowball fight. We took Nanhie to the doctor I cooked different meals for mom, me & the 2 boys all day, packed stuff away, went sledding, had a snowball fight, took care of a rowdy 64lb puppy… I realized this evening that I only sat down to eat meals or drive to the doctor. I even stood the whole time at the doctor! The rest of the day was taking care of everyone else & just running around. I asked my 4yo what his favorite part of the day was. His eyes lit up and he said all of it Mommy! Today was amazing, well not so much the doctor visit, but I did enjoy the book you read to me while waiting. So, today was my favorite part of today. Totally worth the pain & sore muscles tomorrow. Love!.

personal update

I went back to my GI doc. My tTG level was originally borderline for celiac, 3 months of gluten free & no change. (not only with the levels, but also the symptoms) Back on gluten for 3 months & now my tTG levels are high (from 17 to 75). So now I get another upper GI biopsy done. Depending on those results I might be sent to chapel hill for further testing (I’m guessing a small intestine biopsy). But who knows.
My MS is the same, although, my left eye twitch is now almost constant & crazy annoying. My neuro said he’d put me on klonopin if I wanted, but I’d have to decide if the irritation was worth the side effects. :/ And it doesn’t help that every time I mention MS, my gp keeps saying “oh, I was diagnosed with MS, but it turns out I had a brain tumor”. Thanks lady. Big help.
I have to go back to Asheville in a week to stay with my mom while she’s having knee replacement surgery. The boys & I will be up there for at least 3 weeks, so what ever is going on with celiac has to be put on hold until April. I’m living out of a suit case in my own home because everything I own is 6hrs away in Asheville. I’m even sleeping on the couch so my boys can share my bed (since their beds are in Asheville too). Not good for my back! Ugh!
I’m ready to get back to a normal life, not split between 2 towns on opposite sides of the state. My life has been in constant flux since Nov. I’m just ready for normal. I don’t feel like I’m at home any where & it’s getting old.

I was having a great morning….. then I got out if bed :/

I came upstairs & noticed my 3yo was in the bathroom, so I went to the other one then started the coffee. He was still in there, so I opened the door to check on him. He had pooed in his brand new pjs. So then he tried to sit on the potty to finish up. I’m not exaggerating when I say there was not any poop in the potty. And there wasn’t any spot on the outside of the potty not covered in poop. I can’t even begin to imagine how he pulled that off. He had some on his leg, but none on his hands. Unless he rubbed his butt on the toilet from top to bottom, I’m at a total loss. So I’ve bathed a kid, did a load of laundry and cleaned a bathroom before one sip of coffee. Can I get a redo?

I hope nothing but the best year ever for all I follow & all who follow me. Here’s hoping 2013 finds you in better health & spirits. Hugs to all!

I hope nothing but the best year ever for all I follow & all who follow me. Here’s hoping 2013 finds you in better health & spirits. Hugs to all!

Paleo

I’ve seen quite a few posts bashing Paleo diet lately. I’m not an expert on it, but going gluten free, I’ve done some research. Here’s the thing. Most people think that on Paleo, you eat nothing but bacon & fatty meats all day every day. That is simply not the case. They advocate eating at least 9 cups (not pieces , but actually nine measured cups) of fruits & veggies a day. Easier said than done on a limited budget, but I’ve managed. Since there are no grains for carbs in this meal plan, the fat from meats is used to give you the energy to burn. You don’t live on just fatty meats either. Lean meats have their place too. I was told by my doctor to go back on gluten for two months to test for celiac. Prior to that I was on a Paleo diet for 5 months. I lost 30 lbs, didn’t have joint issues & my LDL has gone down. In the one month since I started eating gluten again , my back has gone out twice &I have woken up with swollen joints almost every day. I’m not trying to push Paleo on anyone or bash anyone. It seems to help me. That’s all I care about. I just have a pet peeve about people coming down on something without having correct information. I could go on and on with more research, but I don’t care enough to do so. Hopefully I didn’t offend anyone. I have a little drink in me & like to post whatever I’m thinking when drinking (haha! That rhymed!). Have a great new year!

dumblannisters:

Just a little something I wrote when I couldn’t fall asleep the other night



When I read something some stranger wrote that sounds like they are in my head. This.

dumblannisters:

Just a little something I wrote when I couldn’t fall asleep the other night

When I read something some stranger wrote that sounds like they are in my head. This.
gf birthday

Well, this is definitely going to be a different kind of birthday. I’m having gluten free pancakes for breakfast & a gluten free cake (chocolate with peanut butter frosting & peanut butter cups on it). Every one kept telling me they didn’t notice a difference in the cake when they made one. They must not have tried the cake plain. It is obviously different. I just hope the frosting will make it more normal. Now I’m worried about the pancakes. Oh well, things change. People change. Happy birthday to me.